Lung Fu

CF Doesn't Stand a Chance Against...LUNG FU!

Lung Fu is what happens when Central CT adults with cystic fibrosis come together as a community to learn from one another.

Latest Activity

fivepercent commented on fivepercent's blog post 'Cystic Fibrosis Foundation Voluntary recall of Vicks Sinex Nasal Spray by Proctor & Gamble due to presence of B. cepacia:'
did you see the thing about Genzyme finding bits of metal and rubber in their drugs? I believe they're partnering with the pharma who is doing all the stuff for the CFF. Sorry am on the worst network ever and can't look up all the names. OY
on Friday
little roe commented on fivepercent's blog post 'Cystic Fibrosis Foundation Voluntary recall of Vicks Sinex Nasal Spray by Proctor & Gamble due to presence of B. cepacia:'
Holy Crap! I am glad that I don't use this product...and don't think that I ever will. YIKES is right!
on Friday
fivepercent added a blog post
http://bit.ly/4emQzf YIKES
on Friday
little roe commented on little roe's blog post 'H1N1 is available'
It was nice to see you Lauren - you looked great! I also saw Steve. He is doing well...enjoying his new lungs!
November 10
Lauren Shea commented on little roe's blog post 'H1N1 is available'
I saw ROE! :D
November 9
fivepercent commented on little roe's blog post 'H1N1 is available'
ME TOO wish I had seen you all there. I did see Ted!
November 8
Lauren Shea commented on little roe's blog post 'H1N1 is available'
got mine! :D
November 7
little roe added a blog post
There is a cat that was diagnosed with H1N1. http://www.petplace.com/cats/h1n1-flu-confirmed-in-iowa-cat/page1.aspx Here are some tips to help keep you and your pet healthy: If you are sick, see your doctor. If your pet is showing a problem, s...
November 5
little roe commented on little roe's blog post 'H1N1 is available'
Yeah! Glad to hear that you are feeling better. :)
November 5
fivepercent commented on little roe's blog post 'H1N1 is available'
Well, I should be there kids - hope to see you there!
November 5
fivepercent commented on little roe's blog post 'H1N1 is available'
I gots the e-mail. We know who the REAL kudos goes out too. LUNG FU BROKE DA NEWS, TOO
November 2
little roe commented on little roe's blog post 'H1N1 is available'
Just to make all of you aware...My source on Adult CF H1N1 vaccine clinic was Dr. Lapin. I heard that CCMC had the vaccine but the adult offices did not. I kind of freaked out. So I called everyone (on both sides of the street) and finally got so...
November 2
Katie commented on little roe's blog post 'H1N1 is available'
Can't wait!
October 31
Ted E Greggis commented on little roe's blog post 'H1N1 is available'
Thanks!! I've been emailing back and forth with them about this. Thanks for the heads up!!
October 31
A blog post by little roe was featured
Attention: The H1N1 (swine flu) vaccine is now available for all adult CF patients. Next week someone from the adult clinic will be calling each of us to schedule an appointment for the H1N1 vaccine. I heard they are trying to set up a clinic on...
October 30
little roe added a blog post
Attention: The H1N1 (swine flu) vaccine is now available for all adult CF patients. Next week someone from the adult clinic will be calling each of us to schedule an appointment for the H1N1 vaccine. I heard they are trying to set up a clinic on...
October 30
 

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Forum

fivepercent

CF Education Day 2 Replies

Started by fivepercent. Last reply by fivepercent Oct 22.

little roe

PFT's and what they mean 18 Replies

Started by little roe. Last reply by Lauren Shea Sep 29.

fivepercent

New members, introduce yourself here! 21 Replies

Started by fivepercent. Last reply by fivepercent Jun 19.

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Blog Posts

fivepercent

Cystic Fibrosis Foundation Voluntary recall of Vicks Sinex Nasal Spray by Proctor & Gamble due to presence of B. cepacia:

http://bit.ly/4emQzf

YIKES

Posted by fivepercent on November 20, 2009 at 10:25am — 2 Comments

little roe

Cat confirmed with H1N1

There is a cat that was diagnosed with H1N1.

http://www.petplace.com/cats/h1n1-flu-confirmed-in-iowa-cat/page1.aspx"

Here are some tips to help keep you and your pet healthy:

If you are sick, see your doctor.
If your pet is showing a problem, see your pet's veterinarian right away. (their symptoms are similar to a human: fever, nasal discharge, runny eyes, lethargic behavior, loss of appetite etc.)
If you or… Continue

Posted by little roe on November 5, 2009 at 11:30am

little roe

H1N1 is available

Attention: The H1N1 (swine flu) vaccine is now available for all adult CF patients.

Next week someone from the adult clinic will be calling each of us to schedule an appointment for the H1N1 vaccine.

I heard they are trying to set up a clinic on the morning of Sat. Nov. 7th. Keep in mind the particulars for this process has not been confirmed yet. The adult CF team is trying to work on a schedule for this to run as smoothly as possible. They will be in touch with us next week.

I just wanted t… Continue

Posted by little roe on October 30, 2009 at 7:30pm — 10 Comments

fivepercent

Lessons from Twitter: Participatory Medicine

Thanks to twitter I ran across this article: http://jopm.org/index.php/jpm/article/view/14/17

I really dig it. That's about as an intelligent commentary as I can offer tonight. The healthcare model is changing to one where patients are active in their own care; this article offers some suggestions, from the point of view of a patient. Reminds me of some of the stuff we talk about on this site, how you have to advocate for yourself,… Continue

Posted by fivepercent on October 22, 2009 at 9:57pm

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